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The next day he was complaining of pain in the night and was uncomfortable,which is understandable for what he has gone through,i cant believe how fast they want him downstairs back in the HTU ward,and even when hes there, 2 hours later hes back in the childrens ward,it all seems abit quick,but at least he can watch tv and play with toys in this ward.I have just been talking to a man whos son has fell through a roof hes in intensive care,hope hes ok,the doctors just found out hes got an heart defect and will have to operate on it,his mother says it could have been a blessing in disguise as nobody knew he had it,hope all goes well for them,they seem such a nice family.My son has been complaining of back pain,and after hes settled i go to my room to get some sleep,but in the night i have such a bad dream,im breathing fast,i shout out and this wakes me up,its 4am i want to go down and check on my son,but im thinking dont be stupid its only a dream so i slowly go back to sleep.My son has been in pain through the night,i still think its abit quick how they send them back to the ward as soon as they can,i ask a nurse and she agrees with me,they are now removing a large tube which goes into his back,hes screaming as soon as they touch him,its very upsetting,they are pulling the tube out,he lets out a loud scream,its now out we quickly calm him down,later in the day he waches tv and seems happier,tomorrow they will try and get him out of bed,he needs to be up and about this will speed up his recovery,then then soon he will be home.My sister and mother have rang everyday,im glad all the familys there helping us through this,though its hard for my eldest sister to come as she has had two tradgedies and is still on medication,but we understand and love her all the same.A few days later they take the tubes out from his hands,now he only has the one left in his neck,hes been out in his chair today,we move the chair further away so this will encourage him to walk to it,the nurses say when they see him walking abit more then he can go home.The next day the physio comes to help with his breathing and walking,he gets upset abit but he tries his best,this makes him tired so hes now back in bed,the person who put reece to sleep during the operations came to check on him today,which was very nice of him because it was his day off,shows how much he cares,very thoughtful.We go to the canteen and i still cant believe the prices,we have been here weeks and every day we get a different price,even if you have the same thing,its a different price,cant understand it,but we have enough to worry about,the nurses say they will take the tube from his neck out tomorrow,he got really upset last time,hes always happy and laughs but as soon as a nurse comes near him he starts to cry,hes happy now because hes playing with his nintendo,sister-in-law just phoned asking when we are going home as she got our other four children,shes great really,but i think she needs a rest also.
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Its now tuesday,my son seems fine today hes in his chair and has walked quite abit,and we all think hes doing great,they took his tube out but they did it quickly so he was not upset for long,my sister and mother come to visit and bring him more presents,his bed is full of pokemon,their spoiling him but he doesnt mind,the surgeon arrives today and is pleased with his progress,i have seen the x-rays and now he has three metal rods which is attatched to his spine with screws and wires,i hope we dont go through this again.He has abit of a temperature today and they are watching him closly,every time he needs turning over in bed we have to log roll him,making sure he stays straight at all times,he walks around the hospital later and is doing well,the nurses are pleased,he falls asleep when he goes back in his bed,cant believe we will soon be going home after three weeks,but that first week was bad,never thought a person could cry so much as me and my wife did,but suppose alot of people go through the same thing.Its 7.30pm now and it is throwing it down outside,thundering,lightning,my sons complaining of pain,and wants to be rolled over,we roll him and hes much happier,hopefully it will be a nice day tomorrow then we can all go home.Today we are going home,the doctors been and all is fine,we get our things ready and take our son down in his wheelchair,all the nurses are saying goodbye,just glad its over,we are finally going home,its now 2.30pm and we have just got home just before the other kids get home from school,they will all be pleased to see him,now at last we can get our life back on track after such an emotional time.SIX MONTHS LATER......OH NO WE CANT BELIEVE IT!!.After all my sons been through,first having one operation to go in through his side and to operate and release his spine from the front,then again to operate on his back and to remove parts of his spine,to attach wires,screws and metal rods,after all that,the metal rods have came away from his spine,as you can see in the picture,there is alot of redness,the metal rods are sticking outwards away from his spine,my son has now fell forward abit,he has a puncture wound,a small round hole in his skin,we can see the metal rods through the hole,i cant believe it after two seven hour operations,it lasts only six months,what makes it worse now that there is a direct route to his spine for infections,when we thought everything was alright,getting back to normal,this has to happen and it seems we will have to go through it all again.We see the surgeon,he says he will have to operate,to cut the rods down in size,this has took an extra four months to get them to cut it down,in the meantime we got told to keep it covered,keep it clean,but now my son is in hospital to have it cut down and the hole closed,we are not very happy on why the operation took so long in the first place and why it only lasted six months before it came away from his spine.We made a complaint and the local newspapers took an interest.
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