|
After complaining to the hospital and the newspapers doing a story,we decided to get a top surgeon to perform the next operations,so we saw the top surgeon in this field,he looked at my son and i will never forget what he did when he saw him,his face just looked straight at the floor,he was shaking his head and said "we cant leave him like this"something has to be done,but what he said was unbelievable,he said he would have to operate and take everything out and start all over again from scratch,that means my son has to have the same operations,going in through his side,getting put in traction,having the halo put back on pinned to his skull again,being stretched,then taking more bone from his spine,we cant believe it,all this again.We have not had much luck over the years,mother-in-law died of cancer,so did my father-in-law,then my step dad,ALL WITHIN FIVE MONTHS,we have a son who was born 3 months early,i delivered him on the settee,hes got cerebral palsy,we have son who this is about,whos got scoliosis,my friend got stabbed and killed,i lost two of my nephews in a explosion, dont know how we cope really.After me and my wife have a long discussion we both decide to let the surgeons try again,hope it last more than six months this time.Nearly two years after my son had his first operations,we are back at the hospital,familier surroundings for us,the nurses all saying hello,they all remember us from last time,there is even a lad in here from last time,he fell over and his rod snapped, he has to have it replaced.My son soon settles down into the same routine as last time,my wife will be sleeping next to him and i will be in that same lonely room upstairs,getting upset again,my emotions and thoughts all over the place.The next day my son goes for the first operation,the first of two stages,he gets upset again and he knows whats going to happen,down near the theatre he gets really upset,crying,kicking,its hard for them to give him the injection,so they give him abit of gas to quiet him down,our tears are flowing and we go for a walk,seven hours later he out of theatre and in intensive care,its all the same as last time,watching the monitors,sitting by his bedside for hours,crying in my room when im all alone,he has an halo back on so they can streatch him again,and he has another wound on his other side where they went in the front way,now he will have scars on both sides and a huge one down his back,as i said last time i hope this one works and he dont have to go through it again.
|
|
 |
We cant believe it,my son will be in traction,being streactched with 13pounds pulling his head up by the halo which is pinned to his skull,last time it was for 10 days,this time it will be for SIX WEEKS,i dont know how we all cope,especially my son,i look at him and think,god your a brave boy,but as all parents say,i wish it was me and not him,to go through it once was bad enough,but twice.Its been a long hard six wks,watching them pull his tubes out,my son crying,the nurses do there best to cheer him up,but now hes got to have the next stage,they take the halo off and put some more rods in,they are putting a clamp on the end of the rods so he doesnt fall off the top.Its been another 7 hours,hope all is alright its very worrying,my son is back from theartre he seems fine,hope this is the last operation he has.Its been a week now,he seems alright,he is taller but it doesnt seem right to me,theres a bump in between his shoulders,it might be the clamp to stop him falling over the top of the rods,we now are going home,the rest of the family are pleased to see him,i really do hope this is the last of the operations,hes much happier now hes home.
OH NO NOT AGAIN,my son has had an infection since he left hospital,seven wks after the operations,after we had the best surgeon around, HE HAS NOW FALLEN OF THE TOP OF THE RODS,you can see the bump on his back is more prominent now,his neck has fallen forward,at this moment in time its hard for us to cope,my pillow is soaking wet when i go to bed,the crying begins again.I cannot believe it,he has one operation its not succesful,they take everything out and start again,now this operation is not succesful,we have an appointment to see the surgeon,we are here at the hospital now,the surgeon looks at my son and says the same words as he did before,"IM SORRY WE CANT LEAVE HIM LIKE THIS,WE WILL HAVE TO TRY AGAIN,GO THROUGH THE SAME PROCESS ALL OVER AGAIN",my heart sinks again,i dont think we can take anymore,as for my son,i dont know if we should put him through it again.Its now april 2004,we have just came back from the QMC hospital,and i feel like ive just been kicked in the stomach,i cant believe what the surgeon has said,he wants our son back into hospital by july,so he can once again start all over by removing the metalwork,stretching him,but this time he wants to go further up the spine towards the neck area and to put a strut or something at the front of the spine to help support it.
|
|
